The UK Strategy for Rare Diseases

The UK Strategy aims to ensure no one gets left behind just because they have a rare disease. We want to put the patient’s needs first. To do this, we will bring together the talent, skills and professionalism of all relevant sectors.This will bring real, positive change in how we deal with rare diseases and how we help people with complex conditions  (Quote from The UK Strategy for Rare Disease)

This sounds great news for people in the UK who have a rare disease or being diagnosed with a rare disease  at last things are going to change for them and it states that the Strategy will bring real positive change in how they deal with rare diseases and how they will help people with complex conditions it also states states that all four countries in the United Kingdom will have their own Strategy to deal with patients with rare disease’s and how to help people with complex conditions.

It States that the strategy does not just focus on patient services. It also covers scientific research, which is important for improving our understanding , diagnosis and treatment of a rare disease. The UK has a vibrant life sciences sector, which means they could be at the forefront in the development of new technology that improves services and opportunities for people with rare diseases (quote from The Strategy For Rare Disease)

The UK there are many examples of excellence and world-class services for people with rare diseases. However they want to see further improvement across the whole patient journey:the patient’s experience from their first contact with the NHS through to reaching a diagnosis and onto managing their condition.

Northern Ireland like others have to publish their strategy on rare diseases and there diagnosis my concerns about this are is Northern Ireland Health Service  ready to carry out a strategy on rare disease I will be very intre4sted to read this document when it is published I have many fears in regard to the Northern Ireland Strategy




  1. Hey there! I just would like to give you a big thumbs up for the
    excellent information you’ve got here on this post. I am returning to your website for more soon.

  2. Hi there would you mind sharing which blog platform you’re using?
    I’m planning to start my own blog in the near future but I’m having a hard time choosing between BlogEngine/Wordpress/B2evolution and Drupal.

    The reason I ask is bcause your design and style seems different then most blogs
    and I’m looking for something completely unique.
    P.S My apoogies for getting off-topic but I had to ask!

  3. You actually make it seem so easy with your presentation but I
    find this matter to be really something that I think
    I would never understand. It seems too complicated and extremely broad for me.
    I’m looking forward for your next post, I’ll try to get the hang of it!

  4. I like the helpful information you provide in your articles.
    I will bookmark your weblog and check again here regularly.
    I’m quite certain I’ll learn lots of new stuff right here!

    Best of luck for the next!

  5. Howdy just wanted to give you a quick heads up and let you know a few of the images aren’t loading
    correctly. I’m not sure why but I think its a linking issue.
    I’ve tried it in two different browsers and both show
    the same outcome.

  6. Thanks for another informative website. The place else could
    I am getting that kind of info written in such a perfect manner?

    I’ve a challenge that I’m simply now running on, and I’ve been at the
    glance out for such info.

  7. When someone writes an paragraph he/she maintains the image of a user in his/her mind that how a
    user can be aware of it. Thus that’s why this post is amazing.

  8. Anonymous

    Hey there would you mind letting me know which web
    host you’re working with? I’ve loaded your blog in 3 different internet browsers and I must say this
    blog loads a lot quicker then most. Can you suggest a good internet hosting provider at a fair price?
    Many thanks, I appreciate it!

  9. Jason

    I will be accompanying my father in the strive to find vital cures for children worldwide, I’m looking forward to assisting!

Leave a Reply

Your email address will not be published. Required fields are marked *